London Marathon Week 11: The boy with butterfly skin

You can read the first 10 weeks of Jonathan’s marathon training journey via links further down – and support his chosen charity DEBRA, at this page. Growing up, my cousin Mark suffered with Epidermolysis Bullosa (EB), a condition where the skin blisters easily. My Auntie Di, who was also born with EB, would burst their … Continue reading London Marathon Week 11: The boy with butterfly skin